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It's Time to Test for Lynch syndrome

New findings from Bowel Cancer UK and Beating Bowel Cancer show that more than 8 in 10 hospitals in England are failing to follow clinical guidelines to test all bowel cancer patients at the point of diagnosis for features of Lynch syndrome – a genetic condition that increases the lifetime risk of developing bowel cancer to up to 80%, as well as many other cancers. 

This vital test has clear benefits both in terms of preventing and detecting bowel cancer early, but also the cost-savings this can deliver for a cash-strapped NHS. The lack of local responsibility and national leadership means no one is taking responsibility for people who are at high risk of bowel cancer. This has consequently affected the adoption of clinical guidance, with finances cited as the main barrier to testing by 91% of hospitals. To help your local hospital, take action by telling your MP it’s time to test for Lynch syndrome and stop bowel cancer devastating families with the genetic condition. [Read full report].

Our interactive map where you can see if hospitals in your area are testing all bowel cancer patients in line with NICE diagnostic guidance

Royal Free London NHS Foundation Trust
Good news, this hospital tests all bowel cancer patients for Lynch syndrome at the time of diagnosis. 
 
University College London Hospitals NHS Foundation Trust
This hospital did not respond to our request for information.
Write to your MP to ask them to find out if this hospital is testing all bowel cancer patients at the point of diagnosis for Lynch syndrome.
 
The Whittington Hospital NHS Trust
No, this hospital does not test all bowel cancer patients at the point of diagnosis for Lynch syndrome, in line with clinical guidance, because they aren’t being given the funding to pay for extra tests or staff.
Write to your MP to ask them to express their concern that this vital test is not being commissioned for bowel cancer patients and press for resources to be allocated.

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