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Recent news


The next CPPEG open meeting is on the 13 August 2019. See the agenda here

The main topics of discussion will be the NHS Long Term Plan and Integrated Care

  • Public consultation on proposed move of Moorfields Eye Hospital’s (City Road) Services
  • Public Health prevention strategy
  • Conditions for which over the counter (OTC) items should not routinely be prescribed in primary care: Guidance for CCGs - Implementation

The open meeting will be held on

Date: Tuesday 13 August 2019

Time: 14:00 – 16:00

Venue: St Pancras Hospital, Conference Centre, 4 St Pancras Way, NW1 0PE






Two patient/ public representatives are needed to join an important new steering group supported by the North and East London Cancer Alliance. Working alongside members including GPs, commissioners and public health teams, you’ll help us to drive improvements in cancer prevention, population awareness and screening attendance across north London over the next 3 years.

By joining the group, you’ll ensure that the needs of community members direct the delivery of several Cancer Transformation funded projects, all of which are aiming to improve cancer prevention and screening uptake over the next 12 months. We want to find out what works when it comes to supporting people to stop smoking, for example, and increasing the number of women attending cervical and breast screening appointments.

In the longer term, we will work together to develop and deliver a 3-year plan which identifies and addresses gaps in prevention, awareness and screening initiatives, with a special focus on reducing variation in services/increasing support across north London.


Who is this opportunity for?

-        This opportunity would be particularly suited to people with an interest in public health, health promotion, and/or inequalities in cancer screening.

-        You do not need to have personal experience of using cancer services to apply – much of our work is focussing on cancer prevention and population awareness, so we are keen to involve people who have not had a diagnosis of cancer.

-        You do not need to have taken part in this kind of opportunity before – you will have a key point of contact within the group who can give you a full briefing before the first meeting and any information you need between meetings. Our patient involvement team will also be available to give you support as needed.


Practical details

-        Meetings will take place bi-monthly, for a duration of 1.5 hours. They will take place between 9-5pm in an accessible venue (the venue is awaiting final confirmation, but it will most likely be in either Islington Council offices or Islington Town Hall).

-        Ideally we are looking for someone who would be able to commit to joining 80% of meetings for at least 1 year (this could be in person or via phone)

-        All your travel expenses will be reimbursed, in line with the UCLH Travel Expenses policy.


Get involved

If you think you’re interested or you have any questions at this stage, please send Zoe an email on uclh.getinvolvedwithcancer1@nhs.net before Mon 5th August 2019. We’ll reply with some more information about the steering group, along with a brief Expression of Interest form for you to complete.



Exploring Potential Stem Cell Donors’ Perspectives Surrounding the Use of their Donations


Lancaster University and the charity Anthony Nolan are working together to explore the views of members of the public towards the use of donated cells.


We wish to understand how members of the public feel about how donations facilitated by Anthony Nolan might be used in the future, for whom and for what purposes, and whether these preferences alter depending on the type of cells donated.


We wish to involve members of the public with a range of demographics and different backgrounds e.g. gender, age, and ethnicity.


We are holding focus groups in August in London. You do not need to have scientific, medical, or healthcare knowledge or experience to participate in the focus group discussion.


Reasonable travel expenses will be reimbursed through Anthony Nolan. You will also receive a small gift voucher to thank you for your participation in the focus groups.


Please contact Eva.Zoubek@anthonynolan.org to express your interest in finding out more about participating in an upcoming focus group.


Your involvement in the focus groups will inform the future lifesaving work of Anthony Nolan. This study has been reviewed and approved by the Faculty of Health and Medicine Research Ethics Committee at Lancaster University.



It's that time of year again. Our next Board Meeting in public and our Community Forum is just around the corner. Come along and have your say on health and social care in Camden. The time and further information will be shared closer to the time.

Date: 8 October 2019
Venue: Greenwood Centre, 37 Greenwood Pl, London NW5 1LB

Seats are limited so book early please at: info@healthwatchcamden.co.uk


A new IBD Patient Survey has launched, encouraging everyone with Crohn’s or Colitis to make their voice heard and feedback on the care they receive.

Make your voice heard and complete the new IBD Patient Survey today.

There are variations in care for Inflammatory Bowel Disease (IBD), and IBD UK want to ensure that everyone receives safe, consistent, high-quality, personalised care. Last month, IBD UK launched the new IBD Standards, which set out the care people with Crohn’s and Colitis should receive at every point of their journey.

Alongside an IBD Benchmarking Tool for services, the patient survey will help them to understand the full picture of Crohn’s and Colitis care, measured against the new IBD Standards.

This survey will highlight where IBD teams could improve to give the best possible care.

Complete the survey before the 23rd September to make your voice heard.

If you require a paper copy, a different language or have any questions, please contact info@ibduk.org


Camden's Mental Health Supported Accommodation Pathway Evaluation Panel need 5 Service User Representatives to help decide who is best placed to deliver the service in Camden. Interested? Contact Katja for more information and a discussion. Find out more about the roles here.


We've launced this years' annual report. Read the blog post about it and also take a look! 


Time: Tuesday 2 July 6pm to 8pm 
Venue: The Greenwood Centre, 37 Greenwood Place, NW5 1LB
The meeting will be preceded by a community forum, followed by a short meeting for board members only. 


At the community forum, researchers from the University of Strathclyde and University College London will talk about how they are helping the government plan their vaccination programmes.  As part of this, they want to hear your views about childhood vaccinations.  You will have the opportunity to ask the researchers about their work and to discuss questions such as ... Find out more


Muscular Dystrophy UK (MDUK) would like you to fill in theri survey on cervical screening. The survy is for people of all genders who are eligible for cervical screening. Fill it in here.  



The Royal College of Surgeons of England's Patient and Lay Group (PLG) is looking for four new lay members to help patients’ voices be heard throughout the College’s work on surgery.

To apply, please send a CV and covering letter (outlining why you are interested in the lay role and any relevant experience you may have) to plg@rcseng.ac.uk by Friday 24 May 2019.

Interviews will be held in London on 19 June 2019.

Please find more information and further application details on their website.



Our Food poverty social media project has been covered in two newspapers. Food Poverty is a national issue and we are working with three organisaitons to raise awareness and let people and the organisations helping them have a say on how food poverty can be tackled. The social media campaign runs from 30 April ro 13 May and we will be issuing a report in June. 

Read the newspaper articles.


Invitation to join the Expert through Experience Advisory Group at the Research Department of Primary Care and Population Health, University College London.


The Long Term Plan for the NHS was published on 7 January.

The key ingredients in the plan are:

  • A new model of care, with better funded, more joined up primary and community health

  • More emphasis on prevention and on tackling health inequalities

  • Further work to improve care quality and outcomes

  • Action on the workforce, including more funded training places and greater flexibility for staff

  • Further investment in a digitally enabled NHS

  • Further work to contain cost and make the service financially sustainable

  • Proposals on legislative reform to make new care models easier to implement.

The plan is evolutionary not revolutionary, many of the specific proposals in it have been trialled over the past few years, as part of the previous Five Year Forward View.

The new model of care promises:


This spring Healthwatch Camden will be starting a new project about outpatient referrals.

Local people have told us there is sometimes confusion and delay between a GP referral and getting a specialist outpatient appointment at hospital.

We’re planning to survey patients who are waiting to see specialists at the Royal Free Hospital and at UCLH. We also want to hear from anyone who’s recently been referred by a GP so that we can learn more about these experiences. If you are interested in helping us with this work there are two ways you can get involved. 

First, if you’ve had an outpatient referral recently please get in touch and tell us your story. Did your referral go smoothly?  Were there any problems or delays? 

Second, we will be recruiting a team of research volunteers to help us with our outpatient department surveys.  Interested?  Please see the role description attached.